For a Common Health Data Space serving patients and elderly people all over Europe
We cordially invite you to actively accompany the creation of the European Health Data Space together with us.
ScanBalt – the association of research clusters in the Baltic Sea Region and Scandinavia, has been accompanying the digitisation of healthcare and healthcare research in Europe for many years. In 2020, during the German EU Presidency, we adopted the ScanBalt Declaration together with research regions from all over Europe. Here, we recommended concrete steps toward the digitalisation of health in the EU.
In the meantime, the European Commission has produced the first drafts for this European health data space. We would therefore like to take advantage of the French Presidency of the European Council and evaluate the current proposals of the Commission together with our French partner Genopole. The focus is on improving the quality of care for patients throughout Europe.
Please join us in this initiative and send us your ideas for a common European Health Data Space that uses digitalisation to improve the lives of patients and people in need of care.
PLEASE FILL IN THE QUESTIONNAIRE BY 3 MAY
Genopole and Scanbalt are honoured to invite you to the event: Toward a shared European data health infrastructure, interoperability, and valorization of the data, 8 June 9:30-14:00 (on-site in Paris/online).
An event that will take place on June 8 in person or online, a unique opportunity to share and exchange about the implementation of the European Health Data Space (EHDS)
9:30 – Opening Speech
David Bodet – Genopole director
Sven Parkel – Scanbalt General Secretary
9:45 – SESSION 1: Toward a shared data space: Overview of state of the art, ambition, and strategy
– What initial vision for the European health data space? – TEHDAS
– EHDS project evolution during the French presidency – Health Data Hub
– Regional experience of an implementation strategy for data sharing mechanisms and infrastructures – PariSanté campus
– Round table: What governance model for European cross-border cooperation in the use of health data? – PFUE representative and
11:05 – SESSION 2: Practical views and opportunities from users for an efficient/practical European Data Space
– Research user case in a European collaboration project – Centre National Recherche en Génomique Humain (CNRGH)
– Clinical user case in a European collaboration perspective – Aarhus University Hospital
– Perspective from BIOME Paris, Novartis France digital innovation lab, on European data space as an opportunity to scale start-ups across Europe – BIOME (Novartis)
– Round table: Ensure interoperability and quality of health data for more integrated European collaboration
12:35 – SESSION 3: Technical/practical recommendation from clusters to connect European data infrastructures
– Preamble and key aspects of Scanbalt joint positioning position paper – Scanbalt representatives
– Round table: Toward EU integrated infrastructure ecosystem to allow secondary use of health data for research & development? – Scanbalt position paper contributors
Let us stand together for an EHDS that concretely serves patients and their healthcare.
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