The Joint Declaration

Towards a common European data dataspace in of COVID-19- bottlenecks and solutions from a cluster perspective

Joint European Cluster Declaration
“Towards a common European health data space in the time of Covid-19 and beyond – bottlenecks and solutions from a cluster perspective”

The Declaration on the necessary steps to create a European Health Data Space brings together countries known for their innovative digital health system as well as from regions where the pressure of corona infections has greatly accelerated existing digital care approaches. The input for this declaration comes from countries like Estonia, Sweden, Denmark, Norway, Finland, Italy, Spain, the Netherlands, Belgium, Portugal, the UK, Austria, Germany and Poland.

The declaration is submitted to the German EU Council Presidency as the voice of civil society on the need for a common European health data space. We suggest that these ideas be taken up during the official European Data conference on 11th November 2020 (“Digital Health 2020 – EU on the Move”, organized by the German Ministry of Health. Please support the declaration and join the civil society movement for a European Health Data Space: https://scanbalt.org/scanbaltforum2020/support-the-declaration/

In the declaration, the European experts propose concrete measures:

  • All European citizens should retain control over their health data according to GDPR and be able to share them in a secure way with authorised partners.
  • The EU must extend its harmonization and interoperability efforts to data relevant to promote research, prevention and personalized care.
  • The EU needs a clearing agency for digital health applications in the fields of infectious diseases and control – under the umbrella of the ECDC
  • To achieve faster digitization of hospitals incentive systems modelled on the US government’s “meaningful use” program are recommended
  • To overcome the deployment gap digital health in Europe, the establishment of a biennial research-based EU-wide monitoring-report on best practice examples is recommendable.

Program

Timings mentioned below are in CET time zone.

10.00 – 10.20

Opening speech

Dr Jaanus Pikani (video)
Chairman
ScanBalt

Dr Thomas Steffen (video)
State Secretary
German Ministry of Health

10.20 – 10.55

Keynote speech

Clayton Hamilton (video)
World Health Organization

Prof Ralf Kindervater (video)
BIOPRO Baden-Württemberg GmbH

Dr Gerd Meier zu Köcker (video)
Clusteragency Baden-Württemberg

10.55 – 17.25

Best practice examples: European cluster organisations during the COVID-19 crisis

Session I
10.55 – 12.10
Digital solutions for European cross-border collaboration in healthcare

Recording of the session

Moderator
Prof Peeter Ross
Tallinn University of Technology

Best practice examples from

  • Dr Corinna Glasner, University of Groningen & University Medical Center Groningen – The Netherlands
    “Innovations for safer healthcare in the Dutch-German cross-border region”
  • Sarah Lidé, Medical Valley Alliance – Denmark
    “The case for data across borders”
  • Iris Meyenburg-Altwarg
    Geir Arnhoff, hannoverimpuls/Dossier – Germany/Norway
    “Nursing Capacity and Competencies are key to Healthcare Response Ability”
  • Dr Alexander Zink, University Hospital of the Technical University of Munich – Germany
    “The European Patient Journey. How SARS-CoV-2 shed light on the importance of digital approaches when reaching out to affected individuals and talking about ‘people-centered’ health care”
  • Dr Arho Virkki, Turku University Hospital – Finland
    “Exchange of Patient Data in Cross-Border Research”
  • Dr Therese Feiler, BioM / Ludwig-Maximilians-Universität München
    What’s the Damage? Proportionality and the Ethics of Crisis Response

12.10 – 12.25
Coffee break

Session II
12.25 – 13.40
Digital solutions for European health research

Recording of the session

Moderator
Lars Lindsköld
Swelife / AI Innovation of Sweden / VGR/ University of Gothenburg

Best practice examples from

  • Sonja Aits, Lund University – Sweden
    “Using Big data to extract knowledge – examples from COVID-19”
  • Prof Carsten Ullrich, Centogene  – Germany
    “Preventive high-throughput-testing SARS CoV2”
  • Prof Alfonso Valencia, Barcelona Supercomputing Center – Spain
    “COVID-19, medical data and the medicine of the future”
  • Prof Adriana Maggi, MIND (Milano Innovation District) – Italy
    “The Lombardy Region Covid-19 Biobank Network”
  • Dr Klaus Donsa, “JOANNEUM RESEARCH Forschungsgesellschaft mbH/HEALTH –Institute for Biomedicine and Health Sciences” – Austria
    “BARS – Digital warehouse for COVID-19 stratification”
  • Dr Karolina Tkaczuk, Sano – Centre for Computational Personalised Medicine – Poland
    “Computational Medicine challenges in the times of pandemics”
  • Prof Sebastian Merkel, Bochum University – Germany
    “COOP4HEALTH.NRW – A health data cooperative”

13.40 – 14.40
Lunch break

Session III
14.40 – 15.55
Digital solutions for resilient population protection (tracing/early pandemic
warning systems etc.)

Recording of the session

Moderator
Joaquim Cunha
Health Cluster Portugal

Best practice examples from

  • Toralf Schnell, University hospital Greifswald – Germany
    “Digital Patient Navigation – The Use of Digital Solutions for better handling of the COVID-19 Pandemic”
  • Thibault Helleputte, DNAlytics – Belgium
    “Data-Driven Hospital Load Management in Belgium during Covid19 outbreak.”
  • Isabelle de Zegher, MyData 4 Pandemic Thematic Group – Belgium
    Paul Knowles, MyData Health – UK
    “How to optimize prevention while maximizing mobility in COVID-19. The MyData approach for responsible & citizen centric management of pandemics”
  • Duarte Sequeira, Shared Services for Ministry of Health, EPE/Health Care Systems Unit – Portugal
    “Large-scale Case and Contact Management Information System (first pilot in 7 days after starting development)”
  • Emil Syundyukov, Koatum/University of Latvia – Latvia

15.55 – 16.10
Coffee break

Session IV
16.10 – 17.25
Digital solutions for a protective elderly care system

Recording of the session

Moderator
Prof Josef Hilbert
Network of German Regions for Health

Best practice examples from

  • Bisljim Braimi, Health Innovation Centre of Southern Denmark – Denmark
    “Video consulting during COVID-19 crisis”
  • Dr Eila Erkkilä, Oulu Health – Finland
    “Digital patient monitoring system for triage – Kaikuhealth App”
  • Dr Attila Wohlbrandt, Digital Health Center, Hasso Plattner Institute, University of Potsdam – Germany
    Smart4Health – A European Health Data Space in citizen’s hands”
  • Ivailo Dachov, DHI Cluster – Bulgaria
    “Covid19 hospital-at-home monitoring. The missing part in EU healthcare”
  • Orientina Di Giovanni, Careapt – Italy
    “Tele-health network for Parkinson Disease during COVID-19”
  • Thomas Karopka, Network of German Regions for Health/BioCon Valley GmbH – Germany
    “In search of broadening and deepening: Digital based disease management programmes in Germany” 

17.25 – 17.40

Keynote

Knut Mager (video)
Head Global Data Privacy
Novartis

17.45

Closing

Speakers / Presenters

Inspiring messages

Supporters

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