Building the European Health Data Space (EHDS) Together: Empowering Patients, Strengthening Regions | 10 June 2026 | 9:00 -16:45 | Rostock, Germany

Event Date: 10 June 2026

From Regulation to Implementation – The Future of Secondary Use in Europe’s Regions 25 Years of ScanBalt – Anniversary Symposium

Time: 09:00–17:30
Venue: Rostock, Germany
Format: On-site only

Organised by: BioCon Valley^® GmbH, ScanBalt, DIG-in-HEALTH, NDGR e.V. (Network of German Health Regions e.V.)

About the event

The European Health Data Space (EHDS) sets the legal and technical framework for the cross-border use of health data in Europe. While primary use supports care and treatment, secondary use enables health data to be reused for research, innovation, public health, policy-making, and regulation under clear governance conditions.
This symposium will explore how regions, organisations, and patients can become co-creators in EHDS implementation, with a special focus on readiness for secondary use and on rare disease and nursing care use cases.

Why attend?

• Understand the EHDS framework and the timeline toward full application in 2029.
• Explore how patients can be meaningfully involved in the secondary use of health data.
• Exchange regional strategies for EHDS readiness and cross-border collaboration.
• Discuss how data pooling can accelerate rare disease research and improve treatment pathways.
• Learn about the role of nursing data and regional data ecosystems for future research and innovation.
• Join the launch of a new working group on patient-driven EHDS use cases.

Programme highlights

09:00 – Welcome and opening remarks
Organisers welcome participants and reflect on 25 years of regional innovation in the ScanBalt network.

09:15 – Introduction to the EHDS framework
Overview of the regulation, key milestones, and the path toward national implementation.

09:45 – 11:15 | Session 1: Patient Engagement
Organised by DIG-in-HEALTH
Focus on patient perspectives, trust, transparency, and participation in data-driven research.

11:45 – 13:00 | Session 2: Regional EHDS Readiness
Organised by NDGR
Regional perspectives on governance, access, infrastructure, and collaboration.

14:00 – 15:15 | Session 3: Use Cases for EHDS
Rare diseases and nursing data as practical examples of secondary use.

15:45 – 16:00 | Results & Needs Synthesis
Key insights, patient priorities, regional roles, and next steps.

16:00 – 16:30 | Final Panel
How to empower patients and engage regions in EHDS secondary use.

16:30 – 16:45 | Closing & Next Steps
Launch of the working group “Patient Use Cases – EHDS”.

Audience

This event is designed for stakeholders from healthcare, research, patient organisations, regional health networks, policy, and digital health. It is especially relevant for those working on EHDS readiness, cross-border data use, rare disease research, and patient-centred innovation.

Registration note

This symposium is a satellite event of the 21st National Conference on Health Economy 2026 in Rostock on 11–12 June 2026. Participants registered for this exclusive anniversary event will receive free access to the main conference.

Please register here: https://www.bioconvalley.org/scanbalt25